Keep up with the Fascianos....Paula, Anthony, Matthew and Benjamin. We are dedicated to raising awareness about Fragile X Syndrome, a syndrome which affects Matthew and Benjamin. We are passionate, we work hard, we love each other very much, and we wanted one central place to keep everyone updated on our happenings!
Tuesday, February 26, 2008
Oprah gained a fan today...ME!...
You know...I DVR Oprah every day just because, well, it seems like such a mommy thing to do.
Turth be told, I rarely watch the episode...but I will if I know in advance that it's something I want to see...anything about children and autism spectrum disorders, health and fitness, shopping, home makeovers, people makeovers, etc...
I really enjoyed Monday's episode with Valerie Bertinelli, and learned a LOT about her that I didn't know.
Today also proved to not disappoint. WOW!
I don't like (achem..try not) to blog about Rick Springfield too much...because let's be honest, I lose a little credibility each time I do. I'm a full-time working mom with 2 Fragile X kids, a great husband, wonderful family, I am very involved with my kids and their "stuff" and it leaves little time for much else! Truth is, I love his music, and he saved my life in many ways because of his music...and a chance to see him sing live, is to me, more than a little slice of heaven.
By far, it was the most relaxed Rick I have ever seen. He really found a peer in Oprah. He was totally comfortable talking to her, and she did her thing...she asked some out of the norm questions, which I LOVED.
That's ALL I'm sayin......
Fragile X Webring
You'll see over there to the right, that I've joined a Fragile X Webring which links other blogging FX blog owners together.
Sometimes I still cannot believe how intertwined in my life Fragile X has become. Both boys, my brother, sister...I carry it....it's constant.
There is so much MORE that I want to be doing to raise awareness and get the word out there, and I spend so much time thinking about different things I could do, but I have trouble putting all of them into action. My ideas are endless....I need to be better at taking action on my ideas.
I'm getting ready to set up a Family Foundation, which will give us a means to collect the money we fund raise and give us a name to sponsor events under, etc....logistics.
I'm trying to think of a good name...and if you have one, please e-mail it to me. I had a few, and when I searched them in LegalZoom, it turns out they were all taken either by other non-profits or companies.
I'm also trying to think of something we can create and sell that would help to raise money...the family that started the PA Fragile X Association have these GREAT necklaces (that I wear daily)
and car stickers to raise awareness. If you have ideas about that, by all means, e-mail me.
That's it for today...I hear the boys running the halls upstairs....time to get them ready for school.
Sometimes I still cannot believe how intertwined in my life Fragile X has become. Both boys, my brother, sister...I carry it....it's constant.
There is so much MORE that I want to be doing to raise awareness and get the word out there, and I spend so much time thinking about different things I could do, but I have trouble putting all of them into action. My ideas are endless....I need to be better at taking action on my ideas.
I'm getting ready to set up a Family Foundation, which will give us a means to collect the money we fund raise and give us a name to sponsor events under, etc....logistics.
I'm trying to think of a good name...and if you have one, please e-mail it to me. I had a few, and when I searched them in LegalZoom, it turns out they were all taken either by other non-profits or companies.
I'm also trying to think of something we can create and sell that would help to raise money...the family that started the PA Fragile X Association have these GREAT necklaces (that I wear daily)
and car stickers to raise awareness. If you have ideas about that, by all means, e-mail me.
That's it for today...I hear the boys running the halls upstairs....time to get them ready for school.
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