Paula's Place - Fragile X, Fascianos and More!!: Double X - We are in the Asbury Park Press Today!!!!

Tuesday, October 9, 2007

Double X - We are in the Asbury Park Press Today!!!!

How exciting! Raising awareness....a little at a time!

My Boo...looks so cute too! I will scan and post the picture that appears in the actual paper of the 4 of us together!

3 comments:

Anonymous said...: I can't wait to see it! That is soo exciting.; Tuesday, 09 October, 2007
KC said...: WONDERFUL!! P, you never cease to amaze me. What a great way to get awareness out there. Keep it up!; Wednesday, 10 October, 2007
Kristiem10 said...: Awesome article!!! You really are an amazing mom!; Wednesday, 10 October, 2007

What You Should Know About Fragile X

- Fragile X Syndrome is the most common cause of inherited cognitive impairment

- Only 1 parent has to be a carrier to pass on FX to their child

- 1 in 250 women are carriers; 1 in 800 men are carriers

- Persons with FX may have problems ranging from mild learning disabilities to severe cognitive impairment

- Males and females both can have FX, although often females with FX are much more mildly affected

- Many with FX have autistic-like tendencies; (some people with FX may jump or hand-flap or become sensory overloaded quite easily, but their symptoms are not contagious!)

- Delayed speech is often the first symptom which may trigger a parent to seek a professional opinion regarding their child

- Most FX carriers do not know they are carriers until they have a child diagnosed with FX; Carriers are subject to a 50% chance with each pregnancy to pass the gene to their child.

- FX can be diagnosed with a simple blood test