Paula's Place - Fragile X, Fascianos and More!!

Keep up with the Fascianos....Paula, Anthony, Matthew and Benjamin. We are dedicated to raising awareness about Fragile X Syndrome, a syndrome which affects Matthew and Benjamin. We are passionate, we work hard, we love each other very much, and we wanted one central place to keep everyone updated on our happenings!

Wednesday, March 10, 2010

Advocacy Day Video 3/3/2010

Posted by Paula Fasciano at 9:04 AM
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Labels: Advocacy, Fragile X

1 comments:

youhana said...

nice

Wednesday, 16 June, 2010

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What You Should Know About Fragile X

- Fragile X Syndrome is the most common cause of inherited cognitive impairment


- Only 1 parent has to be a carrier to pass on FX to their child


- 1 in 250 women are carriers; 1 in 800 men are carriers


- Persons with FX may have problems ranging from mild learning disabilities to severe cognitive impairment


- Males and females both can have FX, although often females with FX are much more mildly affected


- Many with FX have autistic-like tendencies; (some people with FX may jump or hand-flap or become sensory overloaded quite easily, but their symptoms are not contagious!)


- Delayed speech is often the first symptom which may trigger a parent to seek a professional opinion regarding their child


- Most FX carriers do not know they are carriers until they have a child diagnosed with FX; Carriers are subject to a 50% chance with each pregnancy to pass the gene to their child.


- FX can be diagnosed with a simple blood test


*****To Learn even more - Click Here
*****

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Some Of Our Favorite Links - Fragile X and Special Needs Related

  • The National Fragile X Foundation
  • The Fragile X Association of New Jersey
  • FRAXA - Fragile X Research Foundation
  • Join the Fragile X Listserv
  • S.C.O.P.E. - Special Children's Organization for Parents and Educators YahooGroup

Blogs I follow...

  • Basically FX
  • Luckiest Blog
  • Wilson's World
  • Holly Daze
  • Fragile X Dad
  • Hayden's Parents
  • All About Potential
  • The Other Lion
  • Fragile X Journey
  • Wright Writes
  • Basically FX
  • Sunny Day
  • FragileMom
  • Fragile X pedition
  • Kristie's Life with Her X Men
  • Suzanne's Just a Bunch of Nothin
  • Fragile X Australia Online

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